Ever attended a block party and found yourself thinking: If only this block party had a purpose? Well, you’re in luck, because just such a block party is coming to the neighborhood!
- When: Saturday, July 4, 3:00pm – 7:00pm
- Where: SE 36th Ave., between King and Harrison (map it)
So what’s the party’s purpose, you ask? It’s an opportunity to learn about PURA Syndrome (a rare genetic condition) and — if you have the means and the inclination — to donate to Pursuit for PURA, AJC’s own nonprofit dedicated to spreading awareness and funding research into this little-known but highly debilitating condition. Pursuit for PURA’s founder (our neighbor McKenzie), whose son Hayden has a PURA Syndrome diagnosis, is also throwing this block party as a celebration of Hayden’s 2nd birthday!
Please note: the family is not asking for birthday gifts. Just bring yourselves! Attendance is free, so swing by for a Zenner’s hot dog and a Pfriem beer (and/or a non-alcoholic bevvie), hang with your neighbors, and learn about PURA Syndrome. Donations to the cause are of course welcome, but not obligatory. And if you’re a July 4th fireworks person, not to worry: the party wraps up at 7pm — well before the fireworks kick off at nightfall!
If you can’t make it in person, you can still support Pursuit for PURA by donating online here and/or purchasing some birthday swag here.
To learn more about Pursuit for PURA, check out its website and/or read the neighborhood newsletter’s June feature (scroll down to the Local Nonprofit Spotlight). For the full and latest block party details, watch this page, and they look forward to seeing you!
